Coping with Chronic Illness: Ehlers-Danlos Syndrome

This site is dedicated to the ongoing journey of emotional and spiritual growth in the face of physical deterioration. Join the author in her day-to-day battles where victories are celebrated and defeats are sorrowfully appreciated for their lessons.

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Who’s a Turkey?

We found a neurosurgeon and I’m scheduled for LOTS of tests next week. We reconvene with the surgeon the following week when we’ll discuss the results of the tests, which should pinpoint what part of the shunt is malfunctioning, if it is indeed malfunctioning. Hmmm. That will be the pivoting point in determining my hair [...]

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