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	<title>Coping with Chronic Illness: Ehlers-Danlos Syndrome</title>
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	<link>http://chronic-connections.net/wordpress</link>
	<description>This site is dedicated to the ongoing journey of emotional and spiritual growth in the face of physical deterioration. Join the author in her day-to-day battles where victories are celebrated and defeats are sorrowfully appreciated for their lessons.</description>
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		<title>Twitter Weekly Updates for 2010-08-15</title>
		<link>http://chronic-connections.net/wordpress/2010/08/15/twitter-weekly-updates-for-2010-08-15-2/</link>
		<comments>http://chronic-connections.net/wordpress/2010/08/15/twitter-weekly-updates-for-2010-08-15-2/#comments</comments>
		<pubDate>Sun, 15 Aug 2010 11:00:00 +0000</pubDate>
		<dc:creator>Susan S.</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Tweets]]></category>
		<category><![CDATA[twitter]]></category>

		<guid isPermaLink="false">http://chronic-connections.net/wordpress/2010/08/15/twitter-weekly-updates-for-2010-08-15-2/</guid>
		<description><![CDATA[
Ehlers-Danlos Conferences 07/2010 in Baltimore: Professionals stressed importance of muscle tone, not muscle strength. #fb #
At the Ehlers-Danlos Syndrome conference, Phys therapist Kathy Zonarich ID’d 5 areas re joint hypermobility &#38; other pain issues (Part 2) #fb #

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]]></description>
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		<slash:comments>0</slash:comments>
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		<item>
		<title>Twitter Weekly Updates for 2010-08-15</title>
		<link>http://chronic-connections.net/wordpress/2010/08/15/twitter-weekly-updates-for-2010-08-15/</link>
		<comments>http://chronic-connections.net/wordpress/2010/08/15/twitter-weekly-updates-for-2010-08-15/#comments</comments>
		<pubDate>Sun, 15 Aug 2010 11:00:00 +0000</pubDate>
		<dc:creator>Susan S.</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Tweets]]></category>
		<category><![CDATA[twitter]]></category>

		<guid isPermaLink="false">http://chronic-connections.net/wordpress/2010/08/15/twitter-weekly-updates-for-2010-08-15/</guid>
		<description><![CDATA[
Ehlers-Danlos Conferences 07/2010 in Baltimore: Professionals stressed importance of muscle tone, not muscle strength. #fb #
At the Ehlers-Danlos Syndrome conference, Phys therapist Kathy Zonarich ID’d 5 areas re joint hypermobility &#38; other pain issues (Part 2) #fb #

Powered by Twitter Tools
]]></description>
		<wfw:commentRss>http://chronic-connections.net/wordpress/2010/08/15/twitter-weekly-updates-for-2010-08-15/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Twitter Weekly Updates for 2010-07-25</title>
		<link>http://chronic-connections.net/wordpress/2010/07/25/twitter-weekly-updates-for-2010-07-25-2/</link>
		<comments>http://chronic-connections.net/wordpress/2010/07/25/twitter-weekly-updates-for-2010-07-25-2/#comments</comments>
		<pubDate>Sun, 25 Jul 2010 11:00:00 +0000</pubDate>
		<dc:creator>Susan S.</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Tweets]]></category>
		<category><![CDATA[twitter]]></category>

		<guid isPermaLink="false">http://chronic-connections.net/wordpress/2010/07/25/twitter-weekly-updates-for-2010-07-25-2/</guid>
		<description><![CDATA[
Ehlers-Danlos conferences has completed, but I will be tweeting several notes from talks I attended on Saturday! #
Dr. Pocinki explained at the conference how Ehlers-Danlos may be affecting the autonomic nervous system. #
Dr. Pocinki explained: EDS causes blood vessels to get relaxed &#38; thus hold onto more blood instead of pushing it along. (Part 1) [...]]]></description>
		<wfw:commentRss>http://chronic-connections.net/wordpress/2010/07/25/twitter-weekly-updates-for-2010-07-25-2/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Twitter Weekly Updates for 2010-07-25</title>
		<link>http://chronic-connections.net/wordpress/2010/07/25/twitter-weekly-updates-for-2010-07-25/</link>
		<comments>http://chronic-connections.net/wordpress/2010/07/25/twitter-weekly-updates-for-2010-07-25/#comments</comments>
		<pubDate>Sun, 25 Jul 2010 11:00:00 +0000</pubDate>
		<dc:creator>Susan S.</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Tweets]]></category>
		<category><![CDATA[twitter]]></category>

		<guid isPermaLink="false">http://chronic-connections.net/wordpress/2010/07/25/twitter-weekly-updates-for-2010-07-25/</guid>
		<description><![CDATA[
Ehlers-Danlos conferences has completed, but I will be tweeting several notes from talks I attended on Saturday! #
Dr. Pocinki explained at the conference how Ehlers-Danlos may be affecting the autonomic nervous system. #
Dr. Pocinki explained: EDS causes blood vessels to get relaxed &#38; thus hold onto more blood instead of pushing it along. (Part 1) [...]]]></description>
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		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Twitter Weekly Updates for 2010-07-18</title>
		<link>http://chronic-connections.net/wordpress/2010/07/18/twitter-weekly-updates-for-2010-07-18-2/</link>
		<comments>http://chronic-connections.net/wordpress/2010/07/18/twitter-weekly-updates-for-2010-07-18-2/#comments</comments>
		<pubDate>Sun, 18 Jul 2010 11:00:00 +0000</pubDate>
		<dc:creator>Susan S.</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Tweets]]></category>
		<category><![CDATA[twitter]]></category>

		<guid isPermaLink="false">http://chronic-connections.net/wordpress/2010/07/18/twitter-weekly-updates-for-2010-07-18-2/</guid>
		<description><![CDATA[
Dr. Francomano now speaking at Ehlers-Danlos conference in Baltimore on pain management #
Francomano says, &#34;Cardiovascular &#38; respiratory pain are significantly affected by the pathophysiology of pain.&#34; #
Francomano says, &#34;Epsom salt soaks replaces magnesium to reduce pain without upsetting the GI system from taking supplements.&#34; #
Francomano says, &#34;Check vitamin D &#38; replete if level is less [...]]]></description>
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		<slash:comments>0</slash:comments>
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		<item>
		<title>Twitter Weekly Updates for 2010-07-18</title>
		<link>http://chronic-connections.net/wordpress/2010/07/18/twitter-weekly-updates-for-2010-07-18/</link>
		<comments>http://chronic-connections.net/wordpress/2010/07/18/twitter-weekly-updates-for-2010-07-18/#comments</comments>
		<pubDate>Sun, 18 Jul 2010 11:00:00 +0000</pubDate>
		<dc:creator>Susan S.</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Tweets]]></category>
		<category><![CDATA[twitter]]></category>

		<guid isPermaLink="false">http://chronic-connections.net/wordpress/2010/07/18/twitter-weekly-updates-for-2010-07-18/</guid>
		<description><![CDATA[
Dr. Francomano now speaking at Ehlers-Danlos conference in Baltimore on pain management #
Francomano says, &#34;Cardiovascular &#38; respiratory pain are significantly affected by the pathophysiology of pain.&#34; #
Francomano says, &#34;Epsom salt soaks replaces magnesium to reduce pain without upsetting the GI system from taking supplements.&#34; #
Francomano says, &#34;Check vitamin D &#38; replete if level is less [...]]]></description>
		<wfw:commentRss>http://chronic-connections.net/wordpress/2010/07/18/twitter-weekly-updates-for-2010-07-18/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Twitter Weekly Updates for 2010-06-20</title>
		<link>http://chronic-connections.net/wordpress/2010/06/20/twitter-weekly-updates-for-2010-06-20/</link>
		<comments>http://chronic-connections.net/wordpress/2010/06/20/twitter-weekly-updates-for-2010-06-20/#comments</comments>
		<pubDate>Sun, 20 Jun 2010 11:00:00 +0000</pubDate>
		<dc:creator>Susan S.</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Tweets]]></category>
		<category><![CDATA[twitter]]></category>

		<guid isPermaLink="false">http://chronic-connections.net/wordpress/2010/06/20/twitter-weekly-updates-for-2010-06-20/</guid>
		<description><![CDATA[
Ehlers-Danlos Syndrome is a family of connective tissue disorders affecting families. #

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]]></description>
		<wfw:commentRss>http://chronic-connections.net/wordpress/2010/06/20/twitter-weekly-updates-for-2010-06-20/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>God&#8217;s Fire</title>
		<link>http://chronic-connections.net/wordpress/2009/11/08/gods-fire/</link>
		<comments>http://chronic-connections.net/wordpress/2009/11/08/gods-fire/#comments</comments>
		<pubDate>Sun, 08 Nov 2009 04:57:37 +0000</pubDate>
		<dc:creator>Susan S.</dc:creator>
				<category><![CDATA[Chronic Illness]]></category>
		<category><![CDATA[Ehlers-Danlos Syndrome]]></category>
		<category><![CDATA[Recumbent Cycling]]></category>
		<category><![CDATA[Spirituality]]></category>
		<category><![CDATA[Stress and Coping]]></category>
		<category><![CDATA[Jewish Holidays]]></category>
		<category><![CDATA[Yom Kippur]]></category>

		<guid isPermaLink="false">http://chronic-connections.net/wordpress/?p=936</guid>
		<description><![CDATA[



It was this time last year that I had a life transforming experience while riding my recumbent trike. It stimulated my writing the following letter to friends and relatives in honor of the new season of autumn. I have chosen to reproduce it here to share my continuing joy for this new season with hopes [...]]]></description>
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		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>When The Answer is Clear: Stage I</title>
		<link>http://chronic-connections.net/wordpress/2009/07/04/when-the-answer-is-clear-stage-i/</link>
		<comments>http://chronic-connections.net/wordpress/2009/07/04/when-the-answer-is-clear-stage-i/#comments</comments>
		<pubDate>Sat, 04 Jul 2009 15:10:00 +0000</pubDate>
		<dc:creator>Susan S.</dc:creator>
				<category><![CDATA[Ehlers-Danlos Syndrome]]></category>
		<category><![CDATA[Pain]]></category>
		<category><![CDATA[Spirituality]]></category>
		<category><![CDATA[Stress and Coping]]></category>
		<category><![CDATA[756.83]]></category>
		<category><![CDATA[Depression]]></category>
		<category><![CDATA[Functional Cranial Settling]]></category>
		<category><![CDATA[ICD-9-CM]]></category>
		<category><![CDATA[Mystery Diagnosis]]></category>
		<category><![CDATA[The Chiari Institute]]></category>

		<guid isPermaLink="false">http://chronic-connections.net/wordpress/?p=21</guid>
		<description><![CDATA[
The quest for an accurate diagnosis when riddled with atypical symptoms is emotionally painful and can test the emotional fortitude of even the most devout optimist. So many of us with mysterious ailments have blogged about desperate needs for an ICD-9-CM code, and the validity that comes along with it. Instead of finding explanations for [...]]]></description>
		<wfw:commentRss>http://chronic-connections.net/wordpress/2009/07/04/when-the-answer-is-clear-stage-i/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Celebrate the Day</title>
		<link>http://chronic-connections.net/wordpress/2009/05/05/celebrate-the-day/</link>
		<comments>http://chronic-connections.net/wordpress/2009/05/05/celebrate-the-day/#comments</comments>
		<pubDate>Tue, 05 May 2009 14:35:00 +0000</pubDate>
		<dc:creator>Susan S.</dc:creator>
				<category><![CDATA[Chronic Illness]]></category>
		<category><![CDATA[Pain]]></category>
		<category><![CDATA[Recumbent Cycling]]></category>
		<category><![CDATA[Stress and Coping]]></category>
		<category><![CDATA[Dancing]]></category>
		<category><![CDATA[Music]]></category>
		<category><![CDATA[Outdoors]]></category>

		<guid isPermaLink="false">http://chronic-connections.net/wordpress/?p=20</guid>
		<description><![CDATA[I recently attended a local, outdoor event which included terrific community performers. The day was beautiful and the mercury peaked at about 90 degrees. My body&#8217;s inflammation level was low, so I was able to cycle from my home to the event and enjoy the performers in the comfort of my recumbent trike&#8217;s seat. Ahhhhhh. [...]]]></description>
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		<slash:comments>0</slash:comments>
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