Blogs-by-Date
- My Story Begins (August 1, 2007) I always loved my work and took equal pride at my more traditional accomplishments at home, but I was never as comfortable with myself as I was during my mid-forties. I had arrived into adulthood and lived every moment to the fullest in the ways that I enjoyed the most.Throughout 2004, I could be seen......
- Moving with Vitamin D (August 8, 2007) I’m exhausted! I would say our house is about 78.6% packed up in preparation for our move to Raleigh. I have to go to NY in a couple days for some ‘maintenance’ work on my facial bones, and then its back home just in time for the drive to our new home. Oy. Scared and......
- Visiting Dr. Chainsaw Part I (August 12, 2007) I’m in New York and despite Dr. Chainsaw’s handy work at oral surgery on me today, I had a lot of fun on Time Square tonight with my companion. We ate at the Hard Rock cafe and the break from stresses of medical meltdowns and preparations for moving when I get back made me feel......
- Visiting Dr. Chainsaw Part II (August 14, 2007) I’m in LaGuardia airport waiting for my very delayed plane for home. I’m in pain and feel extremely sick. I lay down on the floor to try and sleep and eventually had to settle for a seizure instead. Hmmmm. Imagine having a seizure on the airport floor? Well, no one seemed to notice and from......
- Listen to Everyone! (August 17, 2007) I survived and I’m home amongst moving boxes and am recovering. The combination of my SOMI brace and Tempurpedic pillow kept my head and neck steady and comfortable throughout the flight home. My companion talked the entire way with a gentleman next to her as I comfortably dozed to their melodic voices, but I still......
- Stepfather Part I (September 17, 2007) I know that the term “stepfather” has a negative connotation to it and we’re supposed to use better sounding words such as “bonus father”, but my mother’s husband has truly stepped in as my father. I have no problem referring to him as my stepfather because that is exactly who he is to me. I......
- Stepfather Part II (September 18, 2007) Having the gift of a loving father is a wonderful thing and I am sorry to no longer have my father with me in this world. When a stepfather steps in and chooses to fill that role of the missing father to an adult child, it is an incredibly altruistic gift in that the caring......
- Yom Kippur 2007 (September 21, 2007) Stepdad and I have returned from NY back to his home about four hours away from my home. We are thrilled to all be together, my husband, daughter, mother, stepfather, and grandmother, for the rapidly approaching Yom Kippur holiday. The day and a half driving trip back was difficult in that my healing pain has......
- Autumn’s Chainsaw (October 17, 2007) I’m not sure who painted this mornings picture, but who ever did it, she is a very gifted artist!. It appears that autumn is finally here as the strong light of the early morning sun pointed all attention to emerging colors of orange and red amongst the rolling hills of green trees. This is the......
- It’s Working! (November 4, 2007) Well, I’d say its working! I’ve been back and forth the New York a couple of times to see Dr. Chainsaw and this definitely has an impact on my body’s overall inflammation. I guess the jaw bone is connected to the everything bone! So, I fly to New York every two weeks for treatment and......
- Broken Hardware (November 9, 2007) My shunt stopped working. We’re looking for a brain surgeon.
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- Who’s a Turkey? (November 20, 2007) We found a neurosurgeon and I’m scheduled for LOTS of tests next week. We reconvene with the surgeon the following week when we’ll discuss the results of the tests, which should pinpoint what part of the shunt is malfunctioning, if it is indeed malfunctioning. Hmmm. That will be the pivoting point in determining my hair......
- Lots to Think About Now (January 30, 2008) It’s been a long road so far, but alas it appears that there might be a resort full of lively activities just over the horizon, waiting for me to check in. Unfortunately, the road between here and there is partially ‘unpaved’, but with the support of my family, we’ll make sure our wheels are ready......
- Silver Ring Splints (March 7, 2009)
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It’s been a while since I’ve posted, but I’m getting back into the groove.
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Over the past year, I have discovered which orthotic devices are helpful for me. By far the biggest winner is my Silver Ring Splints http://www.silverringsplint.com/ . These very attractive rings have reduced the pain in my hands by about 70%.......
- Cycling Seasons (March 23, 2009) It has been suggested by more than one physician that I might not be alive today if I hadn’t grasped the sport of cycling into my life. Certainly, the quality of my life is greatly enhanced by this luxury. I offer a prayer of thanks every time I begin a new ride. Although I cycle......
- How I Cope When All Is Bleak (April 1, 2009) I don’t always have the perfect attitude, but I try to keep in mind that things tend to get better when everything is really bad. Statisticians refer to this as the floor effect. This video shows what I look and sound like now that everything seems really lousy. Please ignore the fact that I’m overdue......
- How do you cope? (April 16, 2009) Many people ask me how I am able to cope with my illness. The answer is simple: THERE IS NO ONE MAGICAL ANSWER. In general, I use whatever works, whenever it works. And when all else fails, I simply cry. Then I pick myself up and carry on with the next challenge.
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This video blog shares......
- Celebrate the Day (May 5, 2009) I recently attended a local, outdoor event which included terrific community performers. The day was beautiful and the mercury peaked at about 90 degrees. My body’s inflammation level was low, so I was able to cycle from my home to the event and enjoy the performers in the comfort of my recumbent trike’s seat. Ahhhhhh.......
- When The Answer is Clear: Stage I (July 4, 2009)
The quest for an accurate diagnosis when riddled with atypical symptoms is emotionally painful and can test the emotional fortitude of even the most devout optimist. So many of us with mysterious ailments have blogged about desperate needs for an ICD-9-CM code, and the validity that comes along with it. Instead of finding explanations for......
- God’s Fire (November 8, 2009)
It was this time last year that I had a life transforming experience while riding my recumbent trike. It stimulated my writing the following letter to friends and relatives in honor of the new season of autumn. I have chosen to reproduce it here to share my continuing joy for this new season with hopes......
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